“Bike Crazy will be holding a Poker run on Saturday 27th March 2010 to raise awareness and funds for Cystic Fibrosis Research.”

Leaving Townsville  Saturday morning 27th and ending Cairns Saturday night 27th.  An over night stay in Cairns then a straight trip home Sunday the 28th.


 

Funds raised via this Bike Crazy event are in support of Cystic Fibrosis Australia’s (CFA) own fun car rally “The Great Escape Car Rally” and in particular Teresa Carlson with her entry Car 65 – Jewel of the North.  Raised funds will go to the Cystic Fibrosis National Data Registry (NDR). The NDR is a complete statistical record of all people in Australia with Cystic Fibrosis. The registry enables care for people who suffer from CF and to monitor disease progression and morality on a national scale. This also involves genetic research and allows study into the impact of new treatments and technology. It is CFA’s mission to see that every person with CF, no matter what age or sex, is entitled to the very best care whether they live within walking distance of a major CF Clinic or in the most remote part of Australia.

 

What is Cystic Fibrosis (CF)?

 

•           Cystic Fibrosis is a genetic condition predominately affecting the lungs and digestive system.

•           Approx 3000 Aussie children and young adults are affected.

•           Management requires intensive chest physiotherapy for up to 2 hours a day to break up the mucus in the lungs and assist breathing.

•           Up to 40 enzyme tablets are taken daily with food to aid digestion. 

•           Due to advancements the average life expectancy of someone living with CF is now mid thirties, but there are still many children who do not reach adulthood.

•           Approximately one in every 2,500 babies is born with CF.

•           There are a million genetic carriers of CF in Australia.

•           As yet there is no cure.

 



Watch this page for more information on the event. 



Planning has already started . Stay tuned!

Above are the Hot Chippies on their Ride for Cystic Fibrosis.


Bike Crazy met them on the way into Townsville from Charters Towers. We then stopped at
 Rising Sun Honda and followed them to the end destination.
The Watermark on the Strand.

About CF

  • Cystic Fibrosis (CF) is the most common life threatening, recessive genetic condition affecting Australian children.
  • Symptoms can include poor weight gain, troublesome coughs, repeated chest infections, salty sweat and abnormal stools.
  • Cystic Fibrosis is a genetic disease that affects a number of organs in the body (especially the lungs and pancreas) by clogging them with thick, sticky mucus.
  • Repeated infections and blockages can cause irreversible lung damage and death. Mucus can also cause problems in the pancreas preventing the release of enzymes needed for the digestion of food. This means that people with CF can have problems with nutrition.
  • CF is an inherited condition. For a child to be born with CF both parents must be genetic carriers for CF. They do not have CF themselves.  See Causes.
  • In Australia, all babies are screened at birth for CF.
  • At present there is no cure for CF, but the faulty gene has been identified and doctors and scientists are working to find ways of repairing or replacing it. One of the main objectives of the CFA Research Trust is to fund this work.
  • With today’s improved treatment most people with CF are able to lead reasonably normal and productive lives. A great amount of time is being directed towards finding new and improved ways of treating CF and of finally finding a cure.

 

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